{"id":19705,"date":"2021-04-28T09:36:56","date_gmt":"2021-04-28T09:36:56","guid":{"rendered":"https:\/\/neuraxpharm.com\/it\/?p=19705"},"modified":"2022-02-15T10:39:47","modified_gmt":"2022-02-15T10:39:47","slug":"epilepsia-a-skolska-dochadzka-moze-moje-dieta-navstevovat-beznu-skolu-ak-mu-bola-diagnostikovana-epilepsia","status":"publish","type":"post","link":"https:\/\/www.neuraxpharm.com\/sk\/blog\/epilepsia-a-skolska-dochadzka-moze-moje-dieta-navstevovat-beznu-skolu-ak-mu-bola-diagnostikovana-epilepsia","title":{"rendered":"Epilepsia a \u0161kolsk\u00e1 doch\u00e1dzka: M\u00f4\u017ee moje die\u0165a nav\u0161tevova\u0165 be\u017en\u00fa \u0161kolu, ak mu bola diagnostikovan\u00e1 epilepsia?"},"content":{"rendered":"<p>V\u00e4\u010d\u0161ina det\u00ed s epilepsiou by mala by\u0165 schopn\u00e1 nav\u0161tevova\u0165 be\u017en\u00fa \u0161kolu a vzdel\u00e1va\u0165 sa bez v\u00e4\u010d\u0161\u00edch probl\u00e9mov za predpokladu, \u017ee medzi rodinou a \u0161kolou existuje dobr\u00e1 komunik\u00e1cia.<\/p>\n<p>Hoci s\u00fa mnoh\u00e9 \u0161koly ch\u00e1pav\u00e9 a akceptuj\u00face, existuj\u00fa ve\u013ek\u00e9 rozdiely medzi regi\u00f3nmi a krajinami v s\u00favislosti s ofici\u00e1lnou podporou. Existuj\u00fa aj probl\u00e9my t\u00fdkaj\u00face sa inkl\u00fazie det\u00ed a nedostato\u010dnej odbornej pr\u00edpravy person\u00e1lu, ktor\u00e9 maj\u00fa negat\u00edvny vplyv na vzdel\u00e1vanie die\u0165a\u0165a a jeho sk\u00fasenosti s u\u010den\u00edm.<\/p>\n<p>Z prieskumu charitat\u00edvnej organiz\u00e1cie Young Epilepsy vyplynulo, \u017ee len 51 % zamestnancov \u0161k\u00f4l bolo vy\u0161kolen\u00fdch na podporu mlad\u00e9ho \u010dloveka s epilepsiou. V prieskume sa uv\u00e1dza, \u017ee 18 % mlad\u00fdch \u013eud\u00ed s epilepsiou bolo vyl\u00fa\u010den\u00fdch zo \u0161kolsk\u00fdch aktiv\u00edt, ako s\u00fa zhroma\u017edenia, \u0161portov\u00e9 aktivity, mimo\u0161kolsk\u00e9 kluby a v\u00fdlety<sup>1<\/sup>.<\/p>\n<p>Pod\u013ea spr\u00e1vy Svetovej zdravotn\u00edckej organiz\u00e1cie o celosvetovej kampani proti epilepsii to m\u00f4\u017ee br\u00e1ni\u0165 dosahovaniu v\u00fdsledkov vo vzdel\u00e1van\u00ed, ako aj soci\u00e1lnej integr\u00e1cii. Uv\u00e1dza sa v nej: \u201eMlad\u00ed \u013eudia s epilepsiou za\u017e\u00edvaj\u00fa skuto\u010dn\u00fd boj pri vyjedn\u00e1van\u00ed o vzdel\u00e1vac\u00edch syst\u00e9moch a pracovn\u00fdch pr\u00edle\u017eitostiach. Prek\u00e1\u017eky, ktor\u00e9 ich brzdia, sa musia identifikova\u0165 po konzult\u00e1cii so zdravotn\u00edckym person\u00e1lom u\u017e v po\u010diato\u010dnom \u0161t\u00e1diu<sup>2<\/sup>.\u201c<\/p>\n<p>Odborn\u00edci sa zhoduj\u00fa na tom, \u017ee dobr\u00e9 vzdelanie pre die\u0165a s epilepsiou si vy\u017eaduje s\u00fa\u010dinnos\u0165 zapojenia rodi\u010dov a pozit\u00edvneho pr\u00edstupu zo strany \u0161koly. U\u010ditelia sa musia c\u00edti\u0165 komfortne pri rie\u0161en\u00ed z\u00e1chvatov, dokonca aj t\u00fdch dlhotrvaj\u00facich, a pri zaobch\u00e1dzan\u00ed s liekmi proti epilepsii, na \u010do bud\u00fa potrebova\u0165 ofici\u00e1lnu odborn\u00fa pr\u00edpravu.<\/p>\n<p>Deti s epilepsiou s\u00fa z h\u013eadiska vzdel\u00e1vania zranite\u013enou skupinou a pedagogick\u00ed a zdravotn\u00edcki pracovn\u00edci si musia by\u0165 vedom\u00ed dodato\u010dnej podpory, ktor\u00fa mnoh\u00e9 z t\u00fdchto det\u00ed potrebuj\u00fa na v\u0161etk\u00fdch stup\u0148och vzdel\u00e1vania.<\/p>\n<p>V spr\u00e1ve sa zd\u00f4raz\u0148uje, \u017ee epilepsia m\u00f4\u017ee ma\u0165 hlbok\u00fd vplyv na \u017eiaka-pacienta, \u0161kolu a domov, pri\u010dom v spr\u00e1ve sa uv\u00e1dza: \u201eExistuje zlo\u017eit\u00e1 s\u00fahra medzi schopnos\u0165ou u\u010di\u0165 sa a epilepsiou, \u010do m\u00f4\u017ee vies\u0165 k v\u00e4\u010d\u0161iemu riziku, \u017ee deti s epilepsiou bud\u00fa nepochopen\u00e9 a vyl\u00fa\u010den\u00e9 a \u017ee im bud\u00fa odopret\u00e9 rovnak\u00e9 pr\u00edle\u017eitosti na u\u010denie sa a rozvoj ich pln\u00e9ho potenci\u00e1lu<sup>3<\/sup>\u201c.<\/p>\n<h2>Tipy pre rodi\u010dov<\/h2>\n<h3>Komunikujte<\/h3>\n<p>\u0160kola mus\u00ed vedie\u0165 o epilepsii v\u00e1\u0161ho die\u0165a\u0165a a odpor\u00fa\u010da sa oslovi\u0165 riadite\u013ea \u0161koly a udr\u017eiava\u0165 kontakt s triednym u\u010dite\u013eom a v\u0161etk\u00fdmi zamestnancami, ktor\u00ed sa podie\u013eaj\u00fa na starostlivosti o \u017eiakov. Takto m\u00e1te pr\u00edle\u017eitos\u0165 poskytn\u00fa\u0165 inform\u00e1cie o z\u00e1chvatoch v\u00e1\u0161ho die\u0165a\u0165a a o tom, ak\u00fa podporu potrebuje, a odpoveda\u0165 na v\u0161etky ich ot\u00e1zky.<\/p>\n<p>Pochopenie toho, \u010do sa deje, je nevyhnutn\u00e9, aby sa u\u010ditelia c\u00edtili komfortne pri zvl\u00e1dan\u00ed z\u00e1chvatu a jeho vysvet\u013eovan\u00ed spolu\u017eiakom pokojn\u00fdm a informovan\u00fdm sp\u00f4sobom. Umo\u017en\u00ed im tie\u017e zv\u00e1\u017ei\u0165 ak\u00e9ko\u013evek sp\u00fa\u0161\u0165a\u010de a vyhn\u00fa\u0165 sa im.<\/p>\n<h3>Informujte ich o aktu\u00e1lnom dian\u00ed<\/h3>\n<p>Priebe\u017ene informujte \u0161kolu o podrobn\u00fdch inform\u00e1ci\u00e1ch o epilepsii a potreb\u00e1ch v\u00e1\u0161ho die\u0165a\u0165a. To je obzvl\u00e1\u0161\u0165 d\u00f4le\u017eit\u00e9, ak d\u00f4jde k ak\u00fdmko\u013evek zmen\u00e1m v jeho stave alebo lie\u010dbe.<\/p>\n<p>Uistite sa, \u017ee \u0161kola v\u00e1s alebo rodinn\u00e9ho lek\u00e1ra vie v pr\u00edpade n\u00fadze \u013eahko kontaktova\u0165. Ak lek\u00e1r predp\u00edsal z\u00e1chrann\u00fd liek v pr\u00edpade z\u00e1chvatu, uistite sa, \u017ee zamestnanci \u0161koly dostan\u00fa n\u00e1le\u017eit\u00e9 \u0161kolenie o tom, ako ho poda\u0165.<\/p>\n<h3>Zapojte svoje die\u0165a<\/h3>\n<p>Uistite sa, \u017ee va\u0161e die\u0165a vie o udalostiach alebo stavoch, ktor\u00e9 by mohli by\u0165 sp\u00fa\u0161\u0165a\u010dom z\u00e1chvatu, a dajte mu inform\u00e1cie a istotu, aby sa mohlo porozpr\u00e1va\u0165 s u\u010dite\u013emi a in\u00fdmi de\u0165mi.<\/p>\n<p>Je d\u00f4le\u017eit\u00e9 zapoji\u0165 va\u0161e die\u0165a do tohto procesu, aby vedelo, \u017ee u\u010ditelia a zamestnanci vedia, \u017ee m\u00e1 epilepsiu a vedia, \u010do maj\u00fa robi\u0165. Vek die\u0165a\u0165a bude ur\u010dova\u0165 \u00farove\u0148 inform\u00e1ci\u00ed, ktor\u00e9 m\u00f4\u017eete zdie\u013ea\u0165, a to, do akej miery ich m\u00f4\u017eete zapoji\u0165 do komunik\u00e1cie so \u0161kolou. Deti v\u0161ak musia by\u0165 zapojen\u00e9, aby nemali pocit, \u017ee sa rozhodnutia prij\u00edmaj\u00fa bez nich alebo \u017ee s ich ochoren\u00edm sa sp\u00e1ja nejak\u00e1 hanba.<\/p>\n<h3>Poznajte svoje pr\u00e1va<\/h3>\n<p>K dispoz\u00edcii je ofici\u00e1lna podpora zo strany vl\u00e1dnych a vzdel\u00e1vac\u00edch org\u00e1nov, ale typ a \u00farove\u0148 pomoci sa v jednotliv\u00fdch \u0161kol\u00e1ch, miestnych oblastiach a krajin\u00e1ch l\u00ed\u0161ia. Oplat\u00ed sa presk\u00fama\u0165, na ak\u00fa podporu m\u00e1 va\u0161a rodina n\u00e1rok, a n\u00e1pomocn\u00e9 s\u00fa aj region\u00e1lne pacientske skupiny.<\/p>\n<p>Na podporu v\u00e1s a \u0161koly s\u00fa k dispoz\u00edcii zdroje, ktor\u00e9 v\u00e1m v\u0161ak nemusia by\u0165 zn\u00e1me , preto je d\u00f4le\u017eit\u00e9 zisti\u0165, na \u010do m\u00e1te n\u00e1rok, preto\u017ee sl\u00fa\u017eia na to, aby bolo vzdel\u00e1vanie v \u0161kole \u010do najhlad\u0161ie.<\/p>\n<p>&nbsp;<\/p>\n<h3>Referencie:<\/h3>\n<ol>\n<li>Young Epilepsy. Epilepsy Support in Schools. October 2017. Accessed January 2021. <a href=\"https:\/\/youngepilepsy.org.uk\/images\/Epilepsy_support_in_schools_report_-_Oct_17.pdf\" target=\"_blank\" rel=\"noopener\">https:\/\/youngepilepsy.org.uk\/images\/Epilepsy_support_in_schools_report_-_Oct_17.pdf<\/a><\/li>\n<li>Cross JH. Epilepsy in the WHO European region: fostering epilepsy care in Europe. Epilepsia. 2011;52(1):187-188. doi:10.1111\/j.1528-1167.2010.02903.x<\/li>\n<li>Marshall RM, Cupoli JM. Epilepsy and education: the pediatrician&#8217;s expanding role.\u00a0<em>Adv Pediatr<\/em>. 1986;33:159-180.<\/li>\n<\/ol>\n","protected":false},"excerpt":{"rendered":"<p>V\u00e4\u010d\u0161ina det\u00ed s epilepsiou by mala by\u0165 schopn\u00e1 nav\u0161tevova\u0165 be\u017en\u00fa \u0161kolu a vzdel\u00e1va\u0165 sa bez v\u00e4\u010d\u0161\u00edch probl\u00e9mov za predpokladu, \u017ee medzi rodinou a \u0161kolou existuje dobr\u00e1 komunik\u00e1cia.<\/p>\n","protected":false},"author":11,"featured_media":6831,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[22],"tags":[],"class_list":["post-19705","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-epilepsia"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v26.3 (Yoast SEO v26.3) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Epilepsia a \u0161kolsk\u00e1 doch\u00e1dzka: M\u00f4\u017ee moje die\u0165a nav\u0161tevova\u0165 be\u017en\u00fa \u0161kolu, ak mu bola diagnostikovan\u00e1 epilepsia? 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