{"id":19705,"date":"2021-04-28T09:36:56","date_gmt":"2021-04-28T09:36:56","guid":{"rendered":"https:\/\/neuraxpharm.com\/it\/?p=19705"},"modified":"2022-12-13T09:28:56","modified_gmt":"2022-12-13T09:28:56","slug":"epilepsie-a-skolni-dochazka-muze-moje-dite-absolvovat-beznou-skolni-dochazku-pokud-ma-diagnostikovanou-epilepsii","status":"publish","type":"post","link":"https:\/\/www.neuraxpharm.com\/cz\/blog\/epilepsie-a-skolni-dochazka-muze-moje-dite-absolvovat-beznou-skolni-dochazku-pokud-ma-diagnostikovanou-epilepsii","title":{"rendered":"Epilepsie a \u0161koln\u00ed doch\u00e1zka: M\u016f\u017ee moje d\u00edt\u011b absolvovat b\u011b\u017enou \u0161koln\u00ed doch\u00e1zku, pokud m\u00e1 diagnostikovanou epilepsii?"},"content":{"rendered":"

V\u011bt\u0161ina d\u011bt\u00ed s epilepsi\u00ed by m\u011bla m\u00edt mo\u017enost nav\u0161t\u011bvovat b\u011b\u017enou \u0161kolu a bez v\u00fdrazn\u011bj\u0161\u00edch probl\u00e9m\u016f se t\u011b\u0161it ze vzd\u011bl\u00e1v\u00e1n\u00ed, a to za p\u0159edpokladu, \u017ee existuje dobr\u00e1 komunikace mezi rodinou a \u0161kolou.<\/p>\n

A\u010dkoli mnoho \u0161kol, v\u010detn\u011b vysok\u00fdch, m\u00e1 pochopen\u00ed a akceptuje d\u011bti s epilepsi\u00ed, v oblasti ofici\u00e1ln\u00ed podpory jsou obrovsk\u00e9 region\u00e1ln\u00ed a n\u00e1rodn\u00ed rozd\u00edly. Jsou zde tak\u00e9 probl\u00e9my se za\u010dle\u0148ov\u00e1n\u00edm d\u011bt\u00ed do kolektivu a s nedostatkem odborn\u00e9 p\u0159\u00edpravy zam\u011bstnanc\u016f, kter\u00e9 maj\u00ed negativn\u00ed dopad na vzd\u011bl\u00e1v\u00e1n\u00ed d\u00edt\u011bte a jeho zku\u0161enosti prost\u0159ednictv\u00edm u\u010den\u00ed.<\/p>\n

V pr\u016fzkumu charitativn\u00ed organizace Mlad\u00e1 Epilepsie (Young Epilepsy) se zjistilo, \u017ee k podpo\u0159e mlad\u00e9ho \u010dlov\u011bka s epilepsi\u00ed bylo vy\u0161koleno pouze 51 % zam\u011bstnanc\u016f \u0161koly. Uv\u00e1d\u00ed se v n\u011bm tak\u00e9, \u017ee 18 % mlad\u00fdch lid\u00ed s epilepsi\u00ed bylo vylou\u010deno ze \u0161koln\u00edch aktivit, jako jsou shrom\u00e1\u017ed\u011bn\u00ed, sporty, \u0161koln\u00ed kluby a v\u00fdlety1<\/sup>.<\/p>\n

V\u00fdsledek m\u016f\u017ee br\u00e1nit jak dosa\u017een\u00ed vzd\u011bl\u00e1n\u00ed, tak integraci, varovala zpr\u00e1va Sv\u011btov\u00e9 zdravotnick\u00e9 organizace v Glob\u00e1ln\u00ed kampani proti epilepsii. Uv\u00e1d\u00ed se v n\u00ed: \u201eMlad\u00ed lid\u00e9 s epilepsi\u00ed za\u017e\u00edvaj\u00ed skute\u010dn\u00fd boj p\u0159i vyjedn\u00e1v\u00e1n\u00ed o vzd\u011bl\u00e1vac\u00edch syst\u00e9mech a pracovn\u00edch p\u0159\u00edle\u017eitostech. Bari\u00e9ry, kter\u00e9 je brzd\u00ed, se mus\u00ed po konzultaci s l\u00e9ka\u0159em identifikovat v ran\u00e9 f\u00e1zi2<\/sup>.\u201c<\/p>\n

Odborn\u00edci se shoduj\u00ed, \u017ee dobr\u00e9 vzd\u011bl\u00e1n\u00ed pro d\u00edt\u011b s epilepsi\u00ed vy\u017eaduje synergii zapojen\u00ed rodi\u010d\u016f a pozitivn\u00edho p\u0159\u00edstupu ze strany \u0161koly. P\u0159i \u0159e\u0161en\u00ed z\u00e1chvat\u016f, i t\u011bch dlouhotrvaj\u00edc\u00edch, a p\u0159i zach\u00e1zen\u00ed s epileptickou medikac\u00ed se u\u010ditel\u00e9 mus\u00ed c\u00edtit komfortn\u011b, a budou k tomu pot\u0159ebovat ofici\u00e1ln\u00ed \u0161kolen\u00ed.<\/p>\n

Z hlediska vzd\u011bl\u00e1v\u00e1n\u00ed jsou d\u011bti s epilepsi\u00ed zranitelnou skupinou a u\u010ditel\u00e9 i zdravotn\u00edci si mus\u00ed b\u00fdt v\u011bdomi dodate\u010dn\u00e9 podpory, kterou mnoho z t\u011bchto d\u011bt\u00ed pot\u0159ebuje ve v\u0161ech f\u00e1z\u00edch vzd\u011bl\u00e1v\u00e1n\u00ed.<\/p>\n

Ve zpr\u00e1v\u011b se zd\u016fraz\u0148uje, \u017ee epilepsie m\u016f\u017ee hluboce ovlivnit studenta-pacienta, \u0161kolu a domov, uv\u00e1d\u00ed: \u201eMezi schopnost\u00ed u\u010dit se a epilepsi\u00ed existuje slo\u017eit\u00e1 souhra, kter\u00e1 m\u016f\u017ee v\u00e9st k v\u011bt\u0161\u00edmu riziku nepochopen\u00ed a vylou\u010den\u00ed d\u011bt\u00ed s epilepsi\u00ed a riziku, \u017ee jim budou odep\u0159eny rovn\u00e9 p\u0159\u00edle\u017eitosti k u\u010den\u00ed a rozvoji jejich pln\u00e9ho potenci\u00e1lu,\u201c uv\u00e1d\u00ed se ve zpr\u00e1v\u011b3<\/sup>.<\/p>\n

Tipy pro rodi\u010de<\/h2>\n

Komunikujte<\/h3>\n

\u0160kola pot\u0159ebuje o epilepsii va\u0161eho d\u00edt\u011bte v\u011bd\u011bt a je vhodn\u00e9 kontaktovat \u0159editele \u0161koly a udr\u017eovat kontakt se skupinov\u00fdm nebo t\u0159\u00eddn\u00edm u\u010ditelem a v\u0161emi zam\u011bstnanci, kte\u0159\u00ed se pod\u00edlej\u00ed na blahobytu \u017e\u00e1k\u016f. Je to p\u0159\u00edle\u017eitost pomoci jim s informacemi o z\u00e1chvatech va\u0161eho d\u00edt\u011bte a o tom, jakou podporu pot\u0159ebuje, a odpov\u011bd\u011bt na jejich ot\u00e1zky.<\/p>\n

Pochopen\u00ed toho, co se d\u011bje, je pro u\u010ditele nezbytn\u00e9, aby se c\u00edtili komfortn\u011b p\u0159i \u0159e\u0161en\u00ed z\u00e1chvatu a vysv\u011btlili to spolu\u017e\u00e1k\u016fm klidn\u00fdm a informovan\u00fdm zp\u016fsobem. Umo\u017en\u00ed jim to tak\u00e9 zv\u00e1\u017eit jak\u00e9koli spou\u0161t\u011b\u010de z\u00e1chvat\u016f a vyhnout se jim.<\/p>\n

D\u00e1vejte jim aktu\u00e1ln\u00ed informace<\/h3>\n

D\u00e1vejte \u0161kole aktu\u00e1ln\u00ed informace o epilepsii va\u0161eho d\u00edt\u011bte a jeho pot\u0159eb\u00e1ch. Je to zvl\u00e1\u0161t\u011b d\u016fle\u017eit\u00e9, pokud se zm\u011bn\u00ed jejich stav nebo l\u00e9\u010dba<\/p>\n

Ujist\u011bte se, \u017ee \u0161kola m\u016f\u017ee snadno kontaktovat v\u00e1s nebo rodinn\u00e9ho l\u00e9ka\u0159e v p\u0159\u00edpad\u011b nouze. Pokud l\u00e9ka\u0159 p\u0159edepsal pro p\u0159\u00edpad z\u00e1chvatu z\u00e1chrannou medikaci, ujist\u011bte se, \u017ee zam\u011bstnanci \u0161koly jsou \u0159\u00e1dn\u011b pro\u0161koleni v tom, jak ji pod\u00e1vat.<\/p>\n

Zapojte sv\u00e9 d\u00edt\u011b<\/h3>\n

Ujist\u011bte se, \u017ee si va\u0161e d\u00edt\u011b uv\u011bdomuje ud\u00e1losti nebo podm\u00ednky, kter\u00e9 by mohly b\u00fdt spou\u0161t\u011b\u010dem z\u00e1chvatu, a dodejte mu sebev\u011bdom\u00ed a odvahu k tomu, aby si promluvilo s u\u010diteli a ostatn\u00edmi d\u011btmi.<\/p>\n

Jejich zapojen\u00ed do procesu je d\u016fle\u017eit\u00e9 proto, aby v\u011bd\u011bli, \u017ee u\u010ditel\u00e9 a zam\u011bstnanci jsou si v\u011bdomi jejich epilepsie a v\u011bd\u00ed, co maj\u00ed d\u011blat. V\u011bk d\u00edt\u011bte bude ur\u010dovat \u00farove\u0148 informac\u00ed, kter\u00e9 m\u016f\u017eete sd\u00edlet, a do jak\u00e9 m\u00edry je m\u016f\u017eete zapojit do sch\u016fzek se \u0161kolou. D\u011bti je t\u0159eba zapojit, aby nem\u011bly pocit, \u017ee se rozhodnut\u00ed p\u0159ij\u00edmaj\u00ed bez nich, nebo \u017ee jejich zdravotn\u00ed strav p\u0159edstavuje n\u011bjakou ostudu.<\/p>\n

Zn\u00e1t sv\u00e1 pr\u00e1va<\/h3>\n

Ofici\u00e1ln\u00ed podpora ze strany vl\u00e1dy a \u0161kolsk\u00fdch \u00fa\u0159ad\u016f je dostupn\u00e1, ale typ a \u00farove\u0148 pomoci se li\u0161\u00ed podle \u0161kol, m\u00edstn\u00edch oblast\u00ed a n\u00e1rodnost\u00ed. Stoj\u00ed za to\u00a0 zjistit, na jakou podporu m\u00e1 va\u0161e rodina n\u00e1rok a pomoc poskytnou i region\u00e1ln\u00ed pacientsk\u00e9 organizace.<\/p>\n

Zdroje na va\u0161\u00ed podporu a podporu \u0161koly jsou dostupn\u00e9, ale nemus\u00ed b\u00fdt z\u0159ejm\u00e9. Proto je d\u016fle\u017eit\u00e9 zjistit, jak\u00e1 jsou va\u0161e pr\u00e1va, aby byla \u0161koln\u00ed doch\u00e1zka co nejsnaz\u0161\u00ed.<\/p>\n

 <\/p>\n

Odkazy:<\/h3>\n
    \n
  1. Young Epilepsy. Epilepsy Support in Schools. October 2017. Accessed January 2021. https:\/\/youngepilepsy.org.uk\/images\/Epilepsy_support_in_schools_report_-_Oct_17.pdf<\/a><\/li>\n
  2. Cross JH. Epilepsy in the WHO European region: fostering epilepsy care in Europe. Epilepsia. 2011;52(1):187-188. doi:10.1111\/j.1528-1167.2010.02903.x<\/li>\n
  3. Marshall RM, Cupoli JM. Epilepsy and education: the pediatrician’s expanding role.\u00a0Adv Pediatr<\/em>. 1986;33:159-180.<\/li>\n<\/ol>\n","protected":false},"excerpt":{"rendered":"

    V\u011bt\u0161ina d\u011bt\u00ed s epilepsi\u00ed by m\u011bla m\u00edt mo\u017enost nav\u0161t\u011bvovat b\u011b\u017enou \u0161kolu a bez v\u00fdrazn\u011bj\u0161\u00edch probl\u00e9m\u016f se t\u011b\u0161it ze vzd\u011bl\u00e1v\u00e1n\u00ed, a to za p\u0159edpokladu, \u017ee existuje dobr\u00e1 komunikace mezi rodinou a \u0161kolou.<\/p>\n","protected":false},"author":11,"featured_media":6831,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_members_access_role":[],"_members_access_error":""},"categories":[22],"tags":[],"class_list":["post-19705","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-epilepsie"],"yoast_head":"\nEpilepsie a \u0161koln\u00ed doch\u00e1zka - Neuraxpharm CZ<\/title>\n<meta name=\"description\" content=\"D\u00edt\u011b s epilepsi\u00ed m\u016f\u017ee chodit do b\u011b\u017en\u00e9 \u0161koly. 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